Patient privacy

ELSI Support Desk

05/19/2025

As you prepare to collaborate with researchers in the EPND ecosystem, would you like to understand how EPND can support you to remain compliant with the legal obligations and institutional requirements that apply to your organisation?


EPND has established a dedicated ELSI (Ethical, Legal, and Societal Issues) Support Desk to help researchers and cohort representatives with these matters. The experts behind our ELSI Support Desk are available to answer your questions relating to the following topics:

  • Compliance with the General Data Protection Regulation (GDPR)
  • Obtaining research ethics approvals or data and biosample access approvals
  • Contractual arrangements in research projects supported by EPND and our partners
  • The new European Health Data Space (EHDS) regulation and its relevance for your organisation, research project, or datasets you manage
  • Broader ethical, legal, and societal considerations of research projects enabled by EPND and our partners

Interested in learning more, or have a question for our ELSI experts? Contact the EPND ELSI Support Desk via email: ELSI@epnd.org


EPND's ELSI Support Desk is provided in collaboration with the following EPND consortium partners:

Luxembourg National Data Service

LNDS, Luxembourg

Biobanking and Biomolecular Resources Research Infrastructure – European Research Infrastructure Consortium

BBMRI-ERIC, Austria