Resources from the EPND Consortium, including project deliverables, scientific publications and related papers.
Follow along as our work unfolds. Check back for updates, events, and publications.
12/12/2024
Cohort Profile: the gMAD/COSCODE study
The gMAD/COSCODE study, led by Prof. Giovanni Frisoni (University of Geneva) is investigating the mo...
Read more12/11/2024
EPND launches the EPND Hub - a unified gateway for discovery, access and sharing of datasets and biosamples
Today, we are excited to launch the EPND Hub, a major expansion of our data and biosample catalogue ...
Read more11/21/2024
EPND's 3rd Annual Meeting: advancing collaboration in neurodegeneration research
A few weeks ago, EPND convened its 3rd Annual Meeting in Madrid, Spain: celebrating recent achieveme...
Read more10/10/2024
EPND showcased at special symposium during 34th annual Alzheimer Europe conference
The 34th annual Alzheimer Europe conference showcased several initiatives that are shaping the futur...
Read more09/05/2024
The EPND biomarker case studies: an interview with Marianna Rizzo and Stephanie Vos
Our latest biomarker research results were presented at AAIC in August, by our Maastricht University...
Read more07/23/2024
EPND launches Call for Expressions of Interest
EPND has launched an open Call for Expressions of Interest to leverage neurodegeneration biosamples ...
Read more07/23/2024
Application procedure for the EPND Call
Learn more about the application procedure for the EPND Call for Expressions of Interest, including ...
Read more06/07/2024
EPND Vimeo channel
The EPND Vimeo channel includes videos on our platform, tools and resources, with support and guidan...
Read more05/14/2024
EPND Newsletter | May 2024
The May 2024 issue of the EPND e-newsletter includes the latest project updates, with articles on re...
Read more04/26/2024
Transdisciplinary EPND glossary presented at 2024 ADI conference
Our partner Marina Boccardi of DZNE presents the EPND Glossary, a tool designed to enhance transdisc...
Read more04/18/2024
Cohort Profile: the OPDC Discovery study
The OPDC Discovery study looks at how movement and cognition changes with normal ageing and during t...
Read more03/07/2024
EPND Catalogue User Guide
Step-by-step instructions to make research discoverable on the EPND Catalogue ...
Read more03/07/2024
The EPND Catalogue
Explore improved visibility and discoverability of an expanded research collection in the enhanced E...
Read more03/07/2024
EPND featured at the AD Data Initiative symposium
Our co-Lead, Phil Scordis, shared the mission, goals and outcomes of EPND at the AD/PD conference, d...
Read more03/04/2024
Sponsored symposium at AD/PD 2024 features EPND
Our project co-Lead, Phil Scordis, will present EPND at a sponsored symposium on data and sample sha...
Read more01/30/2024
IHI launches a new interdisciplinary initiative to help prevent and treat Alzheimer’s disease at scale
EPND congratulates consortium partners on the launch of AD-RIDDLE...
Read more01/11/2024
Research blog: analysis of CSF biomarkers reveals five molecular subtypes of AD
In a new Nature Aging paper, EPND researchers characterise five molecular subtypes of Alzheimer's di...
Read more01/09/2024
Nature Aging publication
Cerebrospinal fluid proteomics in patients with Alzheimer’s disease reveals five molecular subtypes ...
Read more12/20/2023
Watch the Biobanking Best Practices and Standard Operating Procedures webinar
This webinar featured presentations of our SOPs and Best Practice guides, to support researchers in ...
Read more11/17/2023
EPND participates in multi-project public involvement event
At the first event of its kind, EPND engaged with people affected by Alzheimer's disease and related...
Read more10/18/2023
EPND featured at the 33rd Alzheimer Europe conference in Helsinki
EPND was featured at a Special Symposium on new discoveries from shared data, at the 33rd Annual Alz...
Read more10/08/2023
EPND biomarker best practices workshop: meet the speakers!
Meet the EPND experts in biomarker discovery, development, validation, who will share learnings and ...
Read more10/03/2023
Register for our Workshop on Biomarker Best Practices
This public workshop, organised by EPND's Biomarker workstream, will share standard operating proced...
Read more09/21/2023
World Alzheimer's Day research blog: a new screening workflow for Alzheimer's disease
In a special feature for World Alzheimer's Day, we discuss a recent implementation study that has id...
Read more08/25/2023
EPND Newsletter | August 2023
The launch issue of the EPND e-newsletter introduces the EPND Catalogue, with features highlighting ...
Read more08/09/2023
EPND featured at 2023 Alzheimer's Association International Conference
EPND was well-represented at this year's AAIC conference, with posters and a presence in the exhibit...
Read more07/06/2023
EPND partner profile: Charlotte Teunissen
Professor Teunissen is an expert on biomarkers for Alzheimer's disease and multiple sclerosis, leadi...
Read more07/05/2023
Deliverable 3.3: SOP for body materials collection
This SOP provides guidance on procedures for collecting different types of biosamples, including pla...
Read more07/05/2023
Deliverable 3.4: SOP for biomarker validation
This technical protocol identifies key parameters for the validation of fluid-based biomarkers...
Read more07/05/2023
Deliverable 3.2: Best practices for biobanking
This report provides guidance on harmonisation and standardisation of biosamples, addressing challen...
Read more05/24/2023
Cohort Profile: the BF-PilotAD Study
This cohort profile features the BF-PilotAD cohort, part of the Swedish BioFINDER study. ...
Read more04/30/2023
Parkinson's Awareness Month research blog: PPMI study published in Lancet Neurology
In a final feature for Parkinson's Awareness Month, we present the results of a groundbreaking new b...
Read more04/25/2023
EPND partner profile: Michele Hu
An interview with Professor Michele Hu, a leading Parkinson's disease researcher and co-principal in...
Read more04/17/2023
An interview with the Spanish Parkinson's Federation, and the EPND Parkinson's Advisory Group
In a special article for Parkinson's awareness month, we speak to the president of the Spanish Parki...
Read more04/17/2023
Una entrevista con la Federación Española de Parkinson y el Grupo Asesor de Parkinson
En este artículo especial con motivo del Mes de Concienciación sobre el Parkinson, hablamos con el p...
Read more04/03/2023
EPND poster at AD/PD conference
An ePoster on EPND was presented at the 2023 AD/PD conference...
Read more12/22/2022
Registration still open for Luxembourg conference on precision medicine in Parkinson's disease
26 - 27 January 2023: conference on "Precision medicine in Parkinson's Disease: past lessons and con...
Read more12/15/2022
Frontiers in Neurology publication
Data and sample sharing as an enabler for large-scale biomarker development: the EPND perspective...
Read more12/15/2022
EPND Annual Meeting welcomes collaborators from our 29 partner organisations
Project consortium members gather in Amsterdam for the first EPND Annual Meeting...
Read more11/21/2022
Patient privacy and the GDPR - an interview with Adrian Thorogood
Patient privacy and the GDPR: an EPND interview with Adrian Thorogood...
Read more11/16/2022
Deliverable 2.1: Data Protection Impact Assessment
Identifying, assessing and addressing privacy risks: the EPND DPIA ...
Read more09/21/2022
Patient and caregiver perspectives on research and data sharing: Chris Roberts & Jayne Goodrick
Nothing about us, without all of us: an EPND interview with Chris Roberts and Jayne Goodrick...
Read more08/09/2022
Headlining at AAIC: recommendations for using blood-based biomarker tests in Alzheimer's disease
International Workgroup issues recommendations for the clinical use of blood-based biomarkers in Alz...
Read more08/05/2022
Biomarker research and science policy: an interview with our newest PhD students, Marianna Rizzo and Audrey Hermans
An EPND interview with Marianna Rizzo and Audrey Hermans...
Read more07/08/2022
EPND partners organise AAIC workshop on fluid biomarkers in Alzheimer's disease
AAIC workshop on fluid biomarkers features EPND partners, Charlotte Teunissen and Henrik Zetterberg...
Read more06/20/2022
Job opening at BBMRI-ERIC for a Legal Expert
BBMRI-ERIC is recruiting a Legal Expert to join its ELSI team and contribute to EPND and other proje...
Read more02/07/2022
2022 AD/PD Conference
Annual AD/PD conference to feature several EPND partners ...
Read more02/04/2022
New biomarker study published in JAMA Neurology
Large-scale biomarker study provides new prevalence estimates for Alzheimer’s disease brain patholog...
Read more11/29/2021
Alzheimer Europe 2021 Conference
This year’s conference will be held under the motto “Resilience in dementia: Moving beyond the COVID...
Read more11/02/2021
EPND Press Release
New European initiative will build a collaborative platform for data and sample sharing, to accelera...
Read more08/02/2021
CSF Proteomic Alzheimer's Disease
Predictive Subtypes in Cognitively Intact Amyloid Negative Individuals...
Read more