Project Resources

Resources from the EPND Consortium, including project deliverables, scientific publications and related papers.

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News and updates from EPND

Follow along as our work unfolds. Check back for updates, events, and publications.

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12/12/2024

Cohort Profile: the gMAD/COSCODE study

The gMAD/COSCODE study, led by Prof. Giovanni Frisoni (University of Geneva) is investigating the mo...

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12/11/2024

EPND launches the EPND Hub - a unified gateway for discovery, access and sharing of datasets and biosamples

Today, we are excited to launch the EPND Hub, a major expansion of our data and biosample catalogue ...

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11/21/2024

EPND's 3rd Annual Meeting: advancing collaboration in neurodegeneration research

A few weeks ago, EPND convened its 3rd Annual Meeting in Madrid, Spain: celebrating recent achieveme...

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10/10/2024

EPND showcased at special symposium during 34th annual Alzheimer Europe conference

The 34th annual Alzheimer Europe conference showcased several initiatives that are shaping the futur...

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09/05/2024

The EPND biomarker case studies: an interview with Marianna Rizzo and Stephanie Vos

Our latest biomarker research results were presented at AAIC in August, by our Maastricht University...

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07/23/2024

EPND launches Call for Expressions of Interest

EPND has launched an open Call for Expressions of Interest to leverage neurodegeneration biosamples ...

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07/23/2024

Application procedure for the EPND Call

Learn more about the application procedure for the EPND Call for Expressions of Interest, including ...

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06/07/2024

EPND Vimeo channel

The EPND Vimeo channel includes videos on our platform, tools and resources, with support and guidan...

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05/14/2024

EPND Newsletter | May 2024

The May 2024 issue of the EPND e-newsletter includes the latest project updates, with articles on re...

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04/26/2024

Transdisciplinary EPND glossary presented at 2024 ADI conference

Our partner Marina Boccardi of DZNE presents the EPND Glossary, a tool designed to enhance transdisc...

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04/18/2024

Cohort Profile: the OPDC Discovery study

The OPDC Discovery study looks at how movement and cognition changes with normal ageing and during t...

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03/07/2024

EPND Catalogue User Guide

Step-by-step instructions to make research discoverable on the EPND Catalogue ...

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03/07/2024

The EPND Catalogue

Explore improved visibility and discoverability of an expanded research collection in the enhanced E...

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03/07/2024

EPND featured at the AD Data Initiative symposium

Our co-Lead, Phil Scordis, shared the mission, goals and outcomes of EPND at the AD/PD conference, d...

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03/04/2024

Sponsored symposium at AD/PD 2024 features EPND

Our project co-Lead, Phil Scordis, will present EPND at a sponsored symposium on data and sample sha...

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01/11/2024

Research blog: analysis of CSF biomarkers reveals five molecular subtypes of AD

In a new Nature Aging paper, EPND researchers characterise five molecular subtypes of Alzheimer's di...

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01/09/2024

Nature Aging publication

Cerebrospinal fluid proteomics in patients with Alzheimer’s disease reveals five molecular subtypes ...

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12/20/2023

Watch the Biobanking Best Practices and Standard Operating Procedures webinar

This webinar featured presentations of our SOPs and Best Practice guides, to support researchers in ...

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11/17/2023

EPND participates in multi-project public involvement event

At the first event of its kind, EPND engaged with people affected by Alzheimer's disease and related...

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10/18/2023

EPND featured at the 33rd Alzheimer Europe conference in Helsinki

EPND was featured at a Special Symposium on new discoveries from shared data, at the 33rd Annual Alz...

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10/08/2023

EPND biomarker best practices workshop: meet the speakers!

Meet the EPND experts in biomarker discovery, development, validation, who will share learnings and ...

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10/03/2023

Register for our Workshop on Biomarker Best Practices

This public workshop, organised by EPND's Biomarker workstream, will share standard operating proced...

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09/21/2023

World Alzheimer's Day research blog: a new screening workflow for Alzheimer's disease

In a special feature for World Alzheimer's Day, we discuss a recent implementation study that has id...

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08/25/2023

EPND Newsletter | August 2023

The launch issue of the EPND e-newsletter introduces the EPND Catalogue, with features highlighting ...

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08/09/2023

EPND featured at 2023 Alzheimer's Association International Conference

EPND was well-represented at this year's AAIC conference, with posters and a presence in the exhibit...

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07/06/2023

EPND partner profile: Charlotte Teunissen

Professor Teunissen is an expert on biomarkers for Alzheimer's disease and multiple sclerosis, leadi...

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07/05/2023

Deliverable 3.3: SOP for body materials collection

This SOP provides guidance on procedures for collecting different types of biosamples, including pla...

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07/05/2023

Deliverable 3.4: SOP for biomarker validation

This technical protocol identifies key parameters for the validation of fluid-based biomarkers...

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07/05/2023

Deliverable 3.2: Best practices for biobanking

This report provides guidance on harmonisation and standardisation of biosamples, addressing challen...

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05/24/2023

Cohort Profile: the BF-PilotAD Study

This cohort profile features the BF-PilotAD cohort, part of the Swedish BioFINDER study. ...

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04/30/2023

Parkinson's Awareness Month research blog: PPMI study published in Lancet Neurology

In a final feature for Parkinson's Awareness Month, we present the results of a groundbreaking new b...

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04/25/2023

EPND partner profile: Michele Hu

An interview with Professor Michele Hu, a leading Parkinson's disease researcher and co-principal in...

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04/17/2023

An interview with the Spanish Parkinson's Federation, and the EPND Parkinson's Advisory Group

In a special article for Parkinson's awareness month, we speak to the president of the Spanish Parki...

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04/17/2023

Una entrevista con la Federación Española de Parkinson y el Grupo Asesor de Parkinson

En este artículo especial con motivo del Mes de Concienciación sobre el Parkinson, hablamos con el p...

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04/03/2023

EPND poster at AD/PD conference

An ePoster on EPND was presented at the 2023 AD/PD conference...

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12/22/2022

Registration still open for Luxembourg conference on precision medicine in Parkinson's disease

26 - 27 January 2023: conference on "Precision medicine in Parkinson's Disease: past lessons and con...

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12/15/2022

Frontiers in Neurology publication

Data and sample sharing as an enabler for large-scale biomarker development: the EPND perspective...

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12/15/2022

EPND Annual Meeting welcomes collaborators from our 29 partner organisations

Project consortium members gather in Amsterdam for the first EPND Annual Meeting...

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11/21/2022

Patient privacy and the GDPR - an interview with Adrian Thorogood

Patient privacy and the GDPR: an EPND interview with Adrian Thorogood...

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11/16/2022

Deliverable 2.1: Data Protection Impact Assessment

Identifying, assessing and addressing privacy risks: the EPND DPIA ...

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09/21/2022

Patient and caregiver perspectives on research and data sharing: Chris Roberts & Jayne Goodrick

Nothing about us, without all of us: an EPND interview with Chris Roberts and Jayne Goodrick...

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08/09/2022

Headlining at AAIC: recommendations for using blood-based biomarker tests in Alzheimer's disease

International Workgroup issues recommendations for the clinical use of blood-based biomarkers in Alz...

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07/08/2022

EPND partners organise AAIC workshop on fluid biomarkers in Alzheimer's disease

AAIC workshop on fluid biomarkers features EPND partners, Charlotte Teunissen and Henrik Zetterberg...

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06/20/2022

Job opening at BBMRI-ERIC for a Legal Expert

BBMRI-ERIC is recruiting a Legal Expert to join its ELSI team and contribute to EPND and other proje...

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02/07/2022

2022 AD/PD Conference

Annual AD/PD conference to feature several EPND partners ...

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02/04/2022

New biomarker study published in JAMA Neurology

Large-scale biomarker study provides new prevalence estimates for Alzheimer’s disease brain patholog...

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11/29/2021

Alzheimer Europe 2021 Conference

This year’s conference will be held under the motto “Resilience in dementia: Moving beyond the COVID...

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11/02/2021

EPND Press Release

New European initiative will build a collaborative platform for data and sample sharing, to accelera...

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08/02/2021

CSF Proteomic Alzheimer's Disease

Predictive Subtypes in Cognitively Intact Amyloid Negative Individuals...

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