The EPND e-newsletter was launched in August 2023, featuring the latest news on our platform, partners, research studies and events.

• We celebrate the recent launch of our Cohort Catalogue: a first-of-its-kind, open, accessible database sharing information on neurodegenerative disease research cohorts from over 17 countries across Europe.
• We share a first milestone on our mission to ensure safe and responsible data sharing in EPND: the publication of our DPIA framework, which sets out data flows and controls for GDPR compliance.
• We feature an interview with Chris Roberts and Jayne Goodrick, members of our Patient Expert Group. Chris was diagnosed with mixed dementia in 2012. Since then, he and his wife Jayne Goodrick have campaigned widely to raise awareness and dispel stigma.

Read the newsletter here: https://mailchi.mp/epnd/newsletter_august2023