EPND has created a single point of access for data sharing, discovery, and analysis for available studies, datasets and biosamples with infrastructure and processes to ensure long-term sustainability for data access and reuse. The EPND Hub includes information on data and biosamples from more than 80 neurodegeneration studies, provides tools for users across disciplines, and primes unprecedented discovery, analysis and sharing for essential research.

EPND facilitates new research connections and removes barriers to multidisciplinary collaboration to drive innovation for a diverse community in Europe and beyond. Users can connect with study owners to request data and biosamples and spark research collaborations. Study owners can share information on their research to increase discoverability and use.

Large-scale biomarker research is critical to developing more accurate treatments and diagnostics for neurodegenerative diseases. EPND develops best-in-class policies and procedures for ethical data stewardship with GDPR compliance at the forefront, facilitating large-scale analyses by reducing the burden on participating cohorts and data contributors. Learnings and data generated from biomarker case studies are being incorporated into the EPND platform to drive continued innovation, enabling researchers to discover data and samples to answer new research questions.

EPND utilises best-in-class policies and procedures for ethical data stewardship, optimising these procedures to reduce the burden on participating cohorts and data contributors. The resources and operating strategies for the EPND platform are being developed with sustainability in mind, ensuring EPND will be a self-sustaining entity by the end of 2026.